News and press articles about the Joshua Frase Foundation and CNM/MTM


Brick In The Wall, a short docmentary honoring the life and legacay of Joshua Frase. 
Audentes Therapeutics (BOLD) Reports Dosing of First Patient in ASPIRO, the Phase 1/2 Clinical Trial of AT132
KIRO 7 Investigates Revolutionary Treatment in Dogs to be Tested in Children
 Gene Therapy Leads to Long-Term Benefits in Dog Model of Devastating Childhood Disease
Gene Repalcement Therapy That Works In Dogs to Be Tested In Children 
Determined Parents are Moving the Needle on Gene Therapy
Local Foundation Makes Headway In Gene Replacement Therapy 
 An Active Philanthropist
UW, Family Rewriting Neuromuscular Research
A Walk to Remember
Pine Brook Resident Advocates for Patients with Rare Muscle Disease
Odessa Mom Spreads Awareness of Her Son's Fatal Muscle Disease
Paul Frase remembers former teammate Dennis Byrd
Human Gene Therapy May 2016 Dream On: The Pursuit to Cure Myotubular Myopathy Born Out of a Mother's Vision
Team Titan Research Conference, European Neuro Muscular Center
The Will to Live and the Strength for a Cure
San Francisco's Audentes Therapeutics collaboroates with the Joshua Frase Foundation 
Registry Seeks Participants with Congenital Muscle Disorders

What's Making Adam Sick?
Restoring muscle function in a rare, devastating disease

Press Release: Boston Children's Hospital announces international genomics competition winner

Boston Children's Hospital DNA contest brings hope

Inherited and Endocrine Myopathies
Enzyme Replacement Therapy Shows Promising Results in X-Linked Myotubular Myopathy

Hold Onto Your Dreams

The Blood Alliance helps The Joshua Frase Foundation

Joshua Frase Foundation Muscle Dream Team Gala

Joshua Frase Foundation with Miller on Sports

New Development of Treatment for Myotubular Myopathy Initiated by Joshua Frase Foundation
The story of a life and a legacy

Our recent campaign to increase participation in our Family Registry was published in MDA Quest Magazine, and can be seen below.