News and press articles about the Joshua Frase Foundation and CNM/MTM


 Brick In The Wall, a short docmentary honoring the life and legacay of Joshua Frase. 

Audentes Therapeutics (BOLD) Reports Dosing of First Patient in ASPIRO, the Phase 1/2 Clinical Trial of AT132

KIRO 7 Investigates Revolutionary Treatment in Dogs to be Tested in Children

 Gene Therapy Leads to Long-Term Benefits in Dog Model of Devastating Childhood Disease

Gene Repalcement Therapy That Works In Dogs to Be Tested In Children 

Determined Parents are Moving the Needle on Gene Therapy

Gene Therapy Treats Muscle-Wasting Disease In Dogs

Local Foundation Makes Headway In Gene Replacement Therapy 

 An Active Philanthropist

UW, Family Rewriting Neuromuscular Research

A Walk to Remember

Pine Brook Resident Advocates for Patients with Rare Muscle Disease

Odessa Mom Spreads Awareness of Her Son's Fatal Muscle Disease

Paul Frase remembers former teammate Dennis Byrd

Human Gene Therapy May 2016 Dream On: The Pursuit to Cure Myotubular Myopathy Born Out of a Mother's Vision

Team Titan Research Conference, European Neuro Muscular Center

The Will to Live and the Strength for a Cure

San Francisco's Audentes Therapeutics collaboroates with the Joshua Frase Foundation 

Registry Seeks Participants with Congenital Muscle Disorders

What's Making Adam Sick?

Restoring muscle function in a rare, devastating disease

Press Release: Boston Children's Hospital announces international genomics competition winner

Boston Children's Hospital DNA contest brings hope

Inherited and Endocrine Myopathies

Enzyme Replacement Therapy Shows Promising Results in X-Linked Myotubular Myopathy

Hold Onto Your Dreams

The Blood Alliance helps The Joshua Frase Foundation

Joshua Frase Foundation Muscle Dream Team Gala

Joshua Frase Foundation with Miller on Sports

New Development of Treatment for Myotubular Myopathy Initiated by Joshua Frase Foundation

The story of a life and a legacy


Our recent campaign to increase participation in our Family Registry was published in MDA Quest Magazine, and can be seen below.