Always for the Children

JFF Blog

Tue, May 02, 2017

2016 Year In Review

Category: General  


Doing something always requires faith. Accomplishing something often requires miracles. Bridging the two is what leads to transformation. 


Sun, Feb 19, 2017

Gene therapy treats muscle-wasting disease in dogs

Category: General  

Transfer of the MTM1 gene into the weakened muscle tissue of dogs affected by myotubular myopathy restores muscle strength. The disease arises from a genetic mutation that disrupts the production of a protein needed for muscle function, Replacing the gene appears to be corrective. Click here to read the press release. 


Mon, Feb 06, 2017

Former Jacksonville Jaguars owners champion for rare disease

Category: General  


One little boy, who was granted just 15 years on this earth, touched a lot of people for the good.

Joshua Frase was born with myotubular myopathy (MTM), a rare genetic mutation of the MTM1 gene that makes it difficult for, primarily males, to crawl, walk and breathe on their own. His parents, Paul Frase, a former NFL defensive lineman for the Jacksonville Jaguars, and wife, Alison Rockett Frase, founded the Joshua Frase Foundation when Joshua was born with the disease.

Typically 70 percent of children born with MTM never celebrate their second birthday.

“My son Joshua’s Journey was a struggle between life and death,” said Rockett Frase. “His perseverance and character gave us guarded hope that he would live and not die. He inspired us to raise awareness and forge a path to find a cure for him and his peers.”


Tue, Jan 10, 2017

The Greatest Gift is the Gift of Hope

Category: General  

The greatest gift is the gift of Hope! 

This is a season for hopefulness.  The Joshua Frase Foundation has been faithful with your investment to find the most advanced research available for congenital myopathies and myotubular myopathy.  Will you partner with us financially as we move into this critical stage of several research initiatives?

Dr. Dowling is a neurologist and scientist at SickKids. In September 2016, he was appointed as the inaugural Mogford Campbell Family Chair in Clinical Neuroscience for his work in congenital myopathies (a broad term for any muscle disorder present at birth). 

Dr. Dowling and his team have discovered a drug, previously used as an anticancer agent, that has shown to increase muscle strength and survival in pre-clinical studies. We are in the process of moving into clinical with children and we need your help. 

By making a gift before the end of the calendar year, you can put your contribution to excellent use immediately.

To learn more about this study please ~ download this document

Wishing you and your families a blessed holiday season! 

The Joshua Frase Foundation


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