Always for the Children

JFF Blog

Sun, Dec 24, 2017

Many Blessings this Holiday Season

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Category: General  

As many of you know, The MTM program has entered into clinical trials. Our seed of hope that was planted over 22 years ago is coming to fruition, and the lives of our CNM/MTM kiddos, whether passed or still with us, continue to inspire and encourage us.

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Wed, Dec 06, 2017

A Reason to Celebrate

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Category: General  

We are humbled to share that the path our foundation has forged is being used for other indications, and we look forward to the day when this disease is eradicated from the list of rare diseases without a cure.

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Fri, Oct 20, 2017

Brick in the Wall

Category: General  

We are proud, yet humbled to release this beautiful documentary about Joshua's life, and legacy to find a cure for myotubular myopathy (MTM).

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Sat, Sep 23, 2017

For Such a Time as This

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Category: General  

Vision, fortitude, resolve, a guarded dream, and a child with the will to live is where our story began.  After 24 days in the NICU, we were told to take our child home and enjoy the remainder of the little time we had left. That was February of 1995.

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