Our deepest gratitude for your continued support in the fight against this life threatening disorder. Your 2017 donations have helped meet the unmet needs of patients and families whose lives have been touched by CNM/MTM.

As many of you know, The MTM program has entered into clinical trials. Our seed of hope that was planted over 22 years ago is coming to fruition, and the lives of our CNM/MTM kiddos, whether passed or still with us, continue to inspire and encourage us.

We are humbled to share that the path our foundation has forged is being used for other indications, and we look forward to the day when this disease is eradicated from the list of rare diseases without a cure.

We are proud, yet humbled to release this beautiful documentary about Joshua's life, and legacy to find a cure for myotubular myopathy (MTM).