Joshua Frase Foundation - Resources about neuromuscular disorders
I know that you’re overwhelmed trying to navigate the intricacies of this neuromuscular disorder. We want to help make it just a little bit easier to find the information that you’ll need for the care of your family member.
If you need additional help in understanding these documents and resources, please don’t hesitate to contact me at .
Additionally, a great place to find other families in our community is on Facebook. We suggest that you join the Joshua Frase Foundation facebook group and also the MTM/CNM Family Support* group, both have proved invaluable for answers to questions and support for the daily challenges this disorder can bring.
*The MTM/CNM Family Support Group is a closed group, just send a request to join and you will be added.