Fri, May 29, 2015
Audentes is looking for families
Category: General
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 photo credit: Levi Gershkowitz - at a photo shoot with Emi We have an exiting opportunity for you! Would you like your son’s story to be included on the Audentes Patient Advocacy website? They will be telling the story of six more boys of all ages with XLMTM in the coming year. Levi Gershkowitz, a professional photographer who focuses on patients with rare diseases, will be at the MTM-CNM Family Conference to meet with you and to get to know your son and your family. You can view his work here, it's amazing! I honestly can't say enough great things about what this man does with his camera - he captures the heart of our kids, and you can't ask for more than that! The website photographs will be taken in your home at a mutually arranged date, and you will receive copies of the edited images. If you are interested, please send the following information:
Please email this information to Barbara Wuebbels, Vice-President of Patient Advocacy at Audentes Therapeutics at bwuebbels@audentestx.com. The deadline for applications is July 1, 2015. If they receive more than six letters of interest, Audentes will draw names at the Family Conference. As you may know, JFF also has a page for families to share their journey with MTM/CNM. If you'd like to have you story highlighted on the Joshua Frase Foundation's website, just send us your favorite picture and a paragraph or two about your family - or your journey with MTM/CNM - and we'll have it posted! Always for the children,  |