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News and press releases about the Joshua Frase Foundation and its efforts behind CNM/MTM
Wed, Jun 15, 2011
New Development of Treatment for Myotubular Myopathy Initiated by Joshua Frase Foundation
The Joshua Frase Foundation, a Jacksonville-based nonprofit, announces its collaboration with Généthon, a French biotherapy lab, and Wake Forest University School of...
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Mon, Jun 13, 2011
Hold Onto Your Dreams
Joshua was born with a rare muscular disease, Myotubular Myopathy, and he wasn’t supposed to live for more than a day but he beat the odds and lived till he was...
Read MoreOur recent campaign to increase participation in our Family Registry was published in MDA Quest Magazine, and can be seen below.
