Stem Cell's from full term mothers Introducing a new European Charity whose sole aim is to raise funds for research into the condition. JFF Supports Breakthrough Discovery of Gene Responsible for Muscle Weakness Global Health Network's support community for people affected by "Myotubular Myopathy" Press Release welcoming Dr. Atala to Wake Forest Wake Forest groundbreaking for the Institute ’s new building Myotubular Myopathy Resource Group Dr. Anthony Atala’s Laboratory Centronuclear and Myotubular Myopathy Information Point Harvard Neuromuscular Disease Project The catastrophic illness in children relief fund" for Mass residents only
MUMS - National Parent-to-Parent Network MUMS' main purpose is to provide support to parents in the form of a networking system that matches them with other parents whose children have the same or similar condition. Through a database
of over 17,000 families from 52 countries covering
over 3000 disorders, very rare syndromes
or conditions can be matched
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