It is with great sadness that we share that our son, Joshua Miles Frase, at 15 years of age, lost his life-long battle with Myotubular Myopathy (MTM).   He continues his journey with great joy, now in the presence of our Lord and savior. 

On a daily basis, Joshua defied the odds and obstacles that were set before him.  His passion, tenacity and love for life, powerfully impacted all who knew him.  His life influenced many; from his fellow peers to people and medical researchers around the world.  Joshua’s life has impacted and will change the face of neuro-muscular science as we know it, and The Joshua Frase Foundation will continue on its crusade in his honor.  Words cannot express our heartfelt gratitude for your love of Joshua, and the Joshua’s of the world, as well as the financial support that you have so generously given over the years.  It is paramount that this research continues, as we are so close to changing the lives of so many.

We share with you Joshua’s favorite scripture, found in Isaiah 40:31.

"But they that wait upon the Lord shall renew their strength.  They shall mount up with wings as eagles.  They shall run and not be weary, and they shall walk and not faint". 

In loving memory of Joshua,

Paul, Alison, and Isabella

To make a donation in Joshua's honor