Always for the Children

JFF Blog

Tue, Nov 29, 2016

The Power of Giving

Category: General  

What it Means to Give on #GivingTuesday-To Stand Up and Make an Impact! 

Join hands with the Joshua Frase Foundation as we continue to be a catalyst for a cure! You can purchase product from our Change Starts With One T-Shirt and jewelry line for 20% off of products valued at $39.99 or more. This offer extends through December 6th.

You can also make a direct donation to the foundation by clicking here.  


We make a living by what we get, but we make a life by what we give.
- Winston Churchill

The Joshua Frase Foundation 


Wed, Nov 09, 2016

November Happenings

Category: General  

There has been so much going on the past few months ~ here is a recap on the happenings... 

Taylor Hicks and I chilling at the 2016 Global Genes Summit ~ Great Guy!


Wed, Jun 08, 2016

European Adventures-Tour for a Cure!

Category: General  

In May, I had the trip a lifetime! I was given the opportunity to visit our European MTM families, and all the pieces to make this trip possible fell into place.



Fri, Apr 22, 2016

The Pursuit to Cure MTM Born our of a Mother's Vision

Category: General  


Dear JFF Friends and Families, 

20 years and counting...

We want to share with you another milestone met by our MTM community.  

Awareness and education are key components to the success of any orphan drug program, and I'd like to share that Alison has recently been published online by the longest running gene therapy magazine, Human Gene Therapy.  The attached electronic file link . We are told that the article will be in print in the May issue of Human Gene Therapy.  

This article is for the entire community, so please enjoy the read, and know that each in our MTM/CNM community plays an integral part in the success of this journey.  

Always for the children.   

Best regards,

Paul Frase


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